Organization
Amyotrophic Lateral Sclerosis Society of Canada
- Meetings this Parliament
- 74
- With MPs
- 47
- Since Nov 2021
- 94
- Active registrations
- 1
Most recent reported meeting: Oct 28, 2026.
Lobbying by Amyotrophic Lateral Sclerosis Society of Canada: its registrations, its lobbyists, the bills it has named and every meeting it has reported with federal office holders since November 2021.
← LobbyingWho they meet
Since the current Parliament opened.
MPs
- Peter Fragiskatos Liberal 6
- Marie-Hélène Gaudreau Bloc Québécois 4
- Zoe Royer Liberal 3
- Burton Bailey Conservative 2
- Maggie Chi Liberal 2
- Fraser Tolmie Conservative 2
- Doug Eyolfson Liberal 2
- Judy A. Sgro Liberal 2
- Ernie Klassen Liberal 1
- Jeff Kibble Conservative 1
- David McKenzie Conservative 1
- Karim Bardeesy Liberal 1
Institutions
- House of Commons56
- Senate of Canada5
- Innovation, Science and Economic Development Canada (ISED)5
- Health Canada (HC)3
- Veterans Affairs Canada (VAC)2
- National Defence (DND)1
- Finance Canada (FIN)1
- Employment and Social Development Canada (ESDC)1
Registrations in effect
In-house (organization) In effect since Jan 12, 2026 Receives government funding
Filed by Tammy Moore, Chief Executive Officer
Lobbyists
- David Taylor · Chief Scientific Officer
- Ilayda Ulgenalp · Senior Manager, Advocacy and Stakeholder Relations
- Lauren Gallacher · Coordinator, Advocacy and Stakeholder Relations
- Tammy Moore · Chief Executive Officer
Institutions they may lobby: Canadian Institutes of Health Research (CIHR), Crown-Indigenous Relations and Northern Affairs Canada (CIRNAC), Employment and Social Development Canada (ESDC), Finance Canada (FIN), Health Canada (HC), House of Commons, Innovation, Science and Economic Development Canada (ISED), National Defence (DND), Natural Sciences and Engineering Research Council (NSERC), Patented Medicine Prices Review Board (PMPRB), Prime Minister's Office (PMO), Public Health Agency of Canada (PHAC), Senate of Canada, Treasury Board Of Canada Secretariat (TBS), Veterans Affairs Canada (VAC)
What they're lobbying on (3)Hide details
- To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
- Policies or programs related to access to care and potential treatments for the ALS Community.
- Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
Registration 895134-16791-38. Look it up in the official Registry
Reported meetings
Spreadsheet-
Reported by Tammy Moore · In-house (organization)
- Flordeliz Osler · Senator, Senate of Canada
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Sean Phelan · Senior Policy Advisor, House of Commons
- Andrew Evans · Policy Advisor, House of Commons
- Bethany Livingstone · Stakeholder Relations Advisor, House of Commons
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Jason Smedvik · Special Assistant, House of Commons
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- John Inca Anderson · Director of Parliamentary Affairs to Senator Mohamed, Senate of Canada
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Hanife Masoomifar · Policy Advisor and Issues Manager, House of Commons
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Helena Konanz · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Marie-Hélène Gaudreau · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Aslam Rana · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Tony Loffreda · Senator, Senate of Canada
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Doug Eyolfson · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Fraser Tolmie · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Alana Powell · Senior Policy Advisor, Employment and Social Development Canada (ESDC)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Andréanne Larouche · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- David McKenzie · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Matt Strauss · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Judy A. Sgro · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Michael Barrett · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Burton Bailey · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Francois Robichaud · Director of Parliamentary Affairs, House of Commons
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Jeff Kibble · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Peter Fragiskatos · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Chris d'Entremont · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Lucie Moncion · Senator, Senate of Canada
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Kevin Lamoureux · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Scott Anderson · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
From the Office of the Commissioner of Lobbying's open data, published November 5, 2026. Reports cover oral, arranged meetings with designated public office holders since November 22, 2021; lobbyists file them by the 15th of the following month. Names of MPs are matched to the current House of Commons, and bills are linked when the lobbyist's own description makes clear which bill it means. Contains information licensed under the Open Data Licence Agreement — Office of the Commissioner of Lobbying. Licence. PolitiKit is independent and is not endorsed by the Commissioner of Lobbying.