Organization
Amyotrophic Lateral Sclerosis Society of Canada
- Meetings this Parliament
- 74
- With MPs
- 47
- Since Nov 2021
- 94
- Active registrations
- 1
Most recent reported meeting: Oct 28, 2026.
Lobbying by Amyotrophic Lateral Sclerosis Society of Canada: its registrations, its lobbyists, the bills it has named and every meeting it has reported with federal office holders since November 2021.
← LobbyingRegistrations in effect
In-house (organization) In effect since Jan 12, 2026 Receives government funding
Filed by Tammy Moore, Chief Executive Officer
Lobbyists
- David Taylor · Chief Scientific Officer
- Ilayda Ulgenalp · Senior Manager, Advocacy and Stakeholder Relations
- Lauren Gallacher · Coordinator, Advocacy and Stakeholder Relations
- Tammy Moore · Chief Executive Officer
Institutions they may lobby: Canadian Institutes of Health Research (CIHR), Crown-Indigenous Relations and Northern Affairs Canada (CIRNAC), Employment and Social Development Canada (ESDC), Finance Canada (FIN), Health Canada (HC), House of Commons, Innovation, Science and Economic Development Canada (ISED), National Defence (DND), Natural Sciences and Engineering Research Council (NSERC), Patented Medicine Prices Review Board (PMPRB), Prime Minister's Office (PMO), Public Health Agency of Canada (PHAC), Senate of Canada, Treasury Board Of Canada Secretariat (TBS), Veterans Affairs Canada (VAC)
What they're lobbying on (3)Hide details
- To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
- Policies or programs related to access to care and potential treatments for the ALS Community.
- Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
Registration 895134-16791-38. Look it up in the official Registry
Reported meetings
Spreadsheet-
Reported by Tammy Moore · In-house (organization)
- Mona Fortier · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Jamie Schmale · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Andrew Scheer · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Zoe Royer · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Karim Bardeesy · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Ryan Turnbull · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Robert Oliphant · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Hanife Masoomifar · Policy Advisor and Issues Manager, House of Commons
Policies or programs related to access to care and potential treatments for the ALS Community.
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Reported by Tammy Moore · In-house (organization)
- Bryn Savage · Senior Policy Advisor, Minister of Health's Office, House of Commons
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Mackenzy Metcalfe · Policy Advisor, Finance Canada (FIN)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Manuela Tomic · Senior Policy Advisor, Innovation, Science and Economic Development Canada (ISED)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Peter Fragiskatos · Member of Parliament
- Marie-Hélène Gaudreau · Member of Parliament
- Ziad Aboultaif · Member of Parliament
- Elizabeth May · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
Policies or programs related to access to care and potential treatments for the ALS Community.
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Reported by Tammy Moore · In-house (organization)
- Chris Malette · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Alexa Kalsatos · Senior Operations and Regional Advisor (Ontario), National Defence (DND)
- Abina Mohanarajah · Ontario Regional Advisor, Veterans Affairs Canada (VAC)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Alana Hirtle · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Mary Nicholson · Director of Research, Veterans Affairs Canada (VAC)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Peter Fragiskatos · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Doug Eyolfson · Member of Parliament
Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit. Read more
Policies or programs related to access to care and potential treatments for the ALS Community.
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
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Reported by Tammy Moore · In-house (organization)
- Wendy Shearer · Policy Advisor, Innovation, Science and Economic Development Canada (ISED)
- Vanessa Sung · Policy Advisor, Innovation, Science and Economic Development Canada (ISED)
- Mona Nemer · Chief Science Advisor, Innovation, Science and Economic Development Canada (ISED)
Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit. Read more
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
Policies or programs related to access to care and potential treatments for the ALS Community.
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Reported by Tammy Moore · In-house (organization)
- Burton Bailey · Member of Parliament
Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit. Read more
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
Policies or programs related to access to care and potential treatments for the ALS Community.
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Reported by Tammy Moore · In-house (organization)
- Justine Frame · Special Assistant, Policy, Health Canada (HC)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Ritu Banerjee · Assistant Deputy Minister, Innovation, Science and Economic Development Canada (ISED)
- Rodrigo Arancibia · Sr. Director for Innovation, Science and Economic Development Canada, Innovation, Science and Economic Development Canada (ISED)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Peter Fragiskatos · Member of Parliament
- Marie-Hélène Gaudreau · Member of Parliament
- Ernie Klassen · Member of Parliament
- Kurt Holman · Member of Parliament
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Manuela Tomic · Senior Policy Advisor, Innovation, Science and Economic Development Canada (ISED)
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined. Read more
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Reported by Tammy Moore · In-house (organization)
- Caroline Petit-Turcotte · Manager, Central Nervous System Division, Health Canada (HC)
- Emma Spreekmeester · Manager, Central Nervous System Division, Health Canada (HC)
- Anne Decrouy · Manager / Division Manager, Central Nervous System Division, Health Canada (HC)
- Christine Lefebvre · Associate Director, Health Canada (HC)
and 3 moreShow fewer
- Ana Ludke · Reviewer / Assessment Officer, Health Canada (HC)
- Amelie Vezina · Medical/Scientific Evaluator, Health Canada (HC)
- Valerie Yeung · Medical/Scientific Evaluator, Health Canada (HC)
Policies or programs related to access to care and potential treatments for the ALS Community. Read more
To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
From the Office of the Commissioner of Lobbying's open data, published November 5, 2026. Reports cover oral, arranged meetings with designated public office holders since November 22, 2021; lobbyists file them by the 15th of the following month. Names of MPs are matched to the current House of Commons, and bills are linked when the lobbyist's own description makes clear which bill it means. Contains information licensed under the Open Data Licence Agreement — Office of the Commissioner of Lobbying. Licence. PolitiKit is independent and is not endorsed by the Commissioner of Lobbying.