Skip to content

PolitiKit

Lobbying by The Jesse Davidson Foundation - Defeat Duchenne Canada: its registrations, its lobbyists, the bills it has named and every meeting it has reported with federal office holders since November 2021.

← Lobbying

Organization

The Jesse Davidson Foundation - Defeat Duchenne Canada

Meetings this Parliament
1
With MPs
0
Since Nov 2021
19
Active registrations
1

Most recent reported meeting: Jun 12, 2026.

Registrations in effect

In-house (organization) In effect since Mar 24, 2026

Filed by Nicola Worsfold, Executive Director

Lobbyists

  • Rosalind O'Connell · Director Advocacy

Institutions they may lobby: Accessibility Standards Canada, Health Canada (HC), House of Commons, Patented Medicine Prices Review Board (PMPRB), Prime Minister's Office (PMO)

What they're lobbying on (3)
  • Discuss partnership/cost sharing ideas to increase immediate access to Duchenne treatment abroad.
  • Develop an expedited and economical pathway to encourage industry to apply to Health Canada for approval of treatments for Duchenne muscular dystrophy.
  • Access to treatments for Duchenne muscular dystrophy

Registration 962199-372815-10. Look it up in the official Registry

Reported meetings

Spreadsheet

Filed by Perry Esler (12), Richard Moss (6), Nicola Worsfold (1).

From the Office of the Commissioner of Lobbying's open data, published November 5, 2026. Reports cover oral, arranged meetings with designated public office holders since November 22, 2021; lobbyists file them by the 15th of the following month. Names of MPs are matched to the current House of Commons, and bills are linked when the lobbyist's own description makes clear which bill it means. Contains information licensed under the Open Data Licence Agreement — Office of the Commissioner of Lobbying. Licence. PolitiKit is independent and is not endorsed by the Commissioner of Lobbying.