Organization
Cystic Fibrosis Canada
- Meetings this Parliament
- 19
- With MPs
- 3
- Since Nov 2021
- 42
- Active registrations
- 1
Most recent reported meeting: Apr 24, 2026.
Lobbying by Cystic Fibrosis Canada: its registrations, its lobbyists, the bills it has named and every meeting it has reported with federal office holders since November 2021.
← LobbyingRegistrations in effect
In-house (organization) In effect since Oct 19, 2026
Filed by Kelly Grover, President and Chief Executive Officer
Lobbyists
- Johanne Ouedraogo · Program lead- healthcare and community relations
- Kelly Grover · CEO
- Kim Steele · Director, Government and Community Relations
- Paul Eckford · Chief Scientific Officer
Institutions they may lobby: Canada Revenue Agency (CRA), Canadian Institutes of Health Research (CIHR), Finance Canada (FIN), Health Canada (HC), House of Commons, Innovation, Science and Economic Development Canada (ISED), Office of the Auditor General of Canada (OAG), Patented Medicine Prices Review Board (PMPRB), Prime Minister's Office (PMO), Privy Council Office (PCO), Public Health Agency of Canada (PHAC), Senate of Canada, Statistics Canada (StatCan), Treasury Board Of Canada Secretariat (TBS)
What they're lobbying on (7)Hide details
- Increased federal investment in health-related research.
- Advocating for implementation of Canada's drugs for rare diseases strategy.
- With respect to disability, we advocate for recognition of and supports for people with episodic disabilities.
- In terms of science and technology, we work toward the development of precision and personalized medicines that target the basic defect of cystic fibrosis. We are exploring how the federal government may support these efforts through partnership and funding.
- In terms of research and development, we lobby for support of cystic fibrosis research initiatives that improve the health and wellness of Canadians living with cystic fibrosis.
- Improving access to precision medicines for Canadians with cystic fibrosis and other rare diseases.
- Advocating to stop the regulatory changes to the Patented Medicines Price Review Board (PMPRB).
Registration 939590-266824-35. Look it up in the official Registry
Reported meetings
Spreadsheet-
Reported by Kelly Grover · In-house (organization)
- Nipun Vats · Assistant Deputy Minister, Innovation, Science and Economic Development Canada (ISED)
HealthResearch and Development
-
Reported by Kelly Grover · In-house (organization)
- Fatima Ashgar · Policy Advisor, House of Commons
Health
-
Reported by Kelly Grover · In-house (organization)
- Shuvaloy Majumdar · Member of Parliament
Health
-
Reported by Kelly Grover · In-house (organization)
- Eric Duncan · Member of Parliament
Health
-
Reported by Kelly Grover · In-house (organization)
- Allison Haley · Director of Parliamentary Affairs, House of Commons
Health
-
Reported by Kelly Grover · In-house (organization)
- Julie Dabrusin · Member of Parliament
- Dan Albas · Member of Parliament
- Andrew Taylor · Director, Policy, Research, and Data, Health Canada (HC)
- Karen Reynolds · Director General, Health Canada (HC)
and 1 moreShow fewer
- Jeffrey Skene · Director, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Michelle Boudreau · Associate Assistant Deputy Minister, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Warren Steinly · Member of Parliament, House of Commons
Health
-
Reported by Kelly Grover · In-house (organization)
- Mark Holland · Minister of Health, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Susan Fitzpatrick · Head, Canadian Drug Agency Transition Office, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Jeff Waring · Chief of Operations, Privy Council Office, Privy Council Office (PCO)
Health
-
Reported by Kelly Grover · In-house (organization)
- Jeff Waring · Chief of Operations, Privy Council Office, Privy Council Office (PCO)
- Daniel MacDonald · Director General, Drugs for Rare Diseases, Health Canada (HC)
- Michelle Mujoombar · Director, Specialty Pharmaceuticals, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Kevin Murphy · Director, Disability Inclusion - Minister of Employment, Workforce Development and Disability Inclusion, House of Commons
Employment and Training
-
Reported by Kelly Grover · In-house (organization)
- Michelle Boudreau · Executive Director, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- Michael Barrett · Member of Parliament
Health
-
Reported by Kelly Grover · In-house (organization)
- Michelle Boudreau · Executive Director, Office of Pharmaceutical Management Strategies, Health Canada (HC)
Health
-
Reported by Kelly Grover · In-house (organization)
- James Bezan · Member of Parliament, Selkirk—Interlake—Eastman
- Chris Warkentin · Member of Parliament, Grande Prairie-Mackenzie
- Ziad Aboultaif · Member of Parliament, Edmonton Manning
- Sébastien Lemire · Member of Parliament, Abitibi - Témiscamingue
and 65 moreShow fewer
- Eric Melillo · Member of Parliament, Kenora
- Jenny Kwan · Member of Parliament, Vancouver East
- Matt Jeneroux · Member of Parliament, Edmonton Riverbend
- Glen Motz · Member of Parliament, Medicine Hat —Cardston-Warner
- Heather McPherson · Member of Parliament, Edmonton Strathcona
- Ali Ehsassi · Member of Parliament, Willowdale
- Tako Van Popta · Member of Parliament, Langley – Aldergrove
- Terry Beech · Member of Parliament, Burnaby North – Seymour
- Michelle Rempel Garner · Member of Parliament, Calgary Nose Hill
- Ted Falk · Member of Parliament, Provencher
- Doug Shipley · Member of Parliament, Barrie—Springwater—Oro-Medonte
- Luc Thériault · Member of Parliament, Montcalm
- Alexis Brunelle-Duceppe · Member of Parliament, Lac-Saint-Jean
- Mel Arnold · Member of Parliament, North Okanagan – Shushwap
- Darren Fisher · Member of Parliament, Dartmouth
- Warren Steinley · Member of Parliament, Regina—Lewvan
- Robert Oliphant · Member of Parliament, Don Valley West
- Kyle Seeback · Member of Parliament, Dufferin-Caledon
- Scott Reid · Member of Parliament, Lanark—Frontenac—Kingston
- Bob Zimmer · Member of Parliament, Prince George – Peace River
- Bardish Chagger · Member of Parliament, Waterloo
- Brad Vis · Member of Parliament, Mission – Matsqui
- Michael Cooper · Member of Parliament, St. Albert— Edmonton
- Rob Moore · Member of Parliament, Fundy Royal
- Jasraj Hallan · Member of Parliament, Calgary Forest Lawn
- Patrick Weiler · Member of Parliament, West Vancouver
- Dane Lloyd · Member of Parliament, Sturgeon River - Parkland
- Michael Barrett · Member of Parliament, Leeds—Grenville—Thousand Islands and Rideau Lakes
- John Nater · Member of Parliament, Perth—Wellington
- Sameer Zuberi · Member of Parliament, Pierrefonds—Dollard
- Andrew Scheer · Member of Parliament, Regina—Qu'Appelle
- Elizabeth May · Member of Parliament, Saanich—Gulf Islands
- Randeep Sarai · Member of Parliament, Surrey Centre
- Terry Dowdall · Member of Parliament, Simcoe—Grey
- Tom Kmiec · Member of Parliament, Calgary Shepard
- Mike Lake · Member of Parliament, Edmonton Wetaskiwin
- Don Davies · Member of Parliament, Vancouver – Kingsway
- Jeremy Patzer · Member of Parliament, Cypress Hills—Grasslands
- Glen Motz · Member of Parliament, Charleswood—St. James—Assiniboia—Headingley
- Marc Dalton · Member of Parliament, Pitt Meadows—Maple Ridge
- Chris d'Entremont · Member of Parliament, Pitt Meadows- Maple Ridge
- Mark Strahl · Member of Parliament, Chilliwack – Hope
- Pierre Dalphond · Senator, Senate of Canada
- Peter Julian · Member of Parliament, New Westminster- Burnaby, House of Commons
- Charlie Angus · Member of Parliament, Timmins—James Bay, House of Commons
- Jonathan Wilkinson · Member of Parliament, North Vancouver, House of Commons
- Gary Vidal · Member of Parliament, Desnethé—Missinippi—Churchill River, House of Commons
- Laurel Collins · Member of Parliament, Victoria, House of Commons
- Nathaniel Erskine-Smith · Member of Parliament, Beaches-East York, House of Commons
- Martin Shields · Member of Parliament, Bow River, House of Commons
- Robert Kitchen · Member of Parliament, Souris-Moose Mountain, House of Commons
- Dennis Dawson · Senator, Senate of Canada
- Richard Martel · Member of Parliament, Chicoutimi, House of Commons
- Carla Qualtrough · Member of Parliament, Delta, House of Commons
- Rachel Blaney · Member of Parliament, North Island—Powell River, House of Commons
- Larry Maguire · Member of Parliament, Brandon—Souris, Manitoba, House of Commons
- Candice Bergen · Member of Parliament, Portage—Lisgar, House of Commons
- Marc Serre · Member of Parliament, Nickel Belt, House of Commons
- Alistair MacGregor · Member of Parliament, Cowichan- Malahat- Langford, House of Commons
- Marty Morantz · Member of Parliament, Charleswood—St. James—Assiniboia—Headingley, House of Commons
- Ed Fast · Member of Parliament, Abbottsford, House of Commons
- Ken Hardie · Member of Parliament, Fleetwood – Port Kells, House of Commons
- Kerry-Lynne Findlay · Member of Parliament. South Surrey-White Rock, House of Commons
- Sven Spengemann · Member of Parliament, Mississauga—Lakeshore, House of Commons
- Ron Liepert · Member of Parliament, Calgary Signal Hill, House of Commons
Health
From the Office of the Commissioner of Lobbying's open data, published November 5, 2026. Reports cover oral, arranged meetings with designated public office holders since November 22, 2021; lobbyists file them by the 15th of the following month. Names of MPs are matched to the current House of Commons, and bills are linked when the lobbyist's own description makes clear which bill it means. Contains information licensed under the Open Data Licence Agreement — Office of the Commissioner of Lobbying. Licence. PolitiKit is independent and is not endorsed by the Commissioner of Lobbying.