Organization
Amyotrophic Lateral Sclerosis Society of Canada
- Meetings this Parliament
- 74
- With MPs
- 47
- Since Nov 2021
- 94
- Active registrations
- 1
Most recent reported meeting: Oct 28, 2026.
Lobbying by Amyotrophic Lateral Sclerosis Society of Canada: its registrations, its lobbyists, the bills it has named and every meeting it has reported with federal office holders since November 2021.
← LobbyingRegistrations in effect
In-house (organization) In effect since Jan 12, 2026 Receives government funding
Filed by Tammy Moore, Chief Executive Officer
Lobbyists
- David Taylor · Chief Scientific Officer
- Ilayda Ulgenalp · Senior Manager, Advocacy and Stakeholder Relations
- Lauren Gallacher · Coordinator, Advocacy and Stakeholder Relations
- Tammy Moore · Chief Executive Officer
Institutions they may lobby: Canadian Institutes of Health Research (CIHR), Crown-Indigenous Relations and Northern Affairs Canada (CIRNAC), Employment and Social Development Canada (ESDC), Finance Canada (FIN), Health Canada (HC), House of Commons, Innovation, Science and Economic Development Canada (ISED), National Defence (DND), Natural Sciences and Engineering Research Council (NSERC), Patented Medicine Prices Review Board (PMPRB), Prime Minister's Office (PMO), Public Health Agency of Canada (PHAC), Senate of Canada, Treasury Board Of Canada Secretariat (TBS), Veterans Affairs Canada (VAC)
What they're lobbying on (3)Hide details
- To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
- Policies or programs related to access to care and potential treatments for the ALS Community.
- Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
Registration 895134-16791-38. Look it up in the official Registry
Reported meetings
Spreadsheet-
Reported by Tammy Moore · In-house (organization)
- Supriya Sharma · Chief Medical Advisor, HC / Senior Medical Advisor for HPFB, Health Canada (HC)
- Melissa Hunt · A/Director General of the Pharmaceutical Drugs Directorate, Health Canada (HC)
- Kelly Robinson · Director General of the Marketed Health Products Directorate, Health Canada (HC)
- Sven Schirmer · Senior Advisor from the Assistant Deputy Minister’s Office in the Health Products and Food Branch, Health Canada (HC)
and 1 moreShow fewer
- Sophie Sommerer · Director General of the Biologic and Radiopharmaceutical Drugs Directorate, Health Canada (HC)
Policies or programs related to access to care and potential treatments for the ALS Community.
-
Reported by Tammy Moore · In-house (organization)
- Yasir Naqvi · Member of Parliament
Health
-
Reported by Tammy Moore · In-house (organization)
- Judy A. Sgro · Member of Parliament
Health
-
Reported by Tammy Moore · In-house (organization)
- Francis Drouin · Member of Parliament, House of Commons
Health
-
Reported by Tammy Moore · In-house (organization)
- Peter Fragiskatos · Member of Parliament
BudgetHealthResearch and Development
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Reported by Tammy Moore · In-house (organization)
- Supriya Sharma · Chief Medical Advisor, HC / Senior Medical Advisor for HPFB, Health Canada (HC)
- Sven Schirmer · Senior Advisor, Health Canada (HC)
- Jeffrey Skene · Director, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Karen Fortin · Director, Pharmacy Policy Development Division Non-Insured Health Benefits Directorate, Indigenous Services Canada (ISC)
- Michelle Mujoomdar · Manager, Pharmacy Policy Development Division, Non-Insured Health Benefits Directorate, Indigenous Services Canada (ISC)
Health
-
Reported by Tammy Moore · In-house (organization)
- Francis Drouin · Member of Parliament, House of Commons
- Pam Damoff · Member of Parliament, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Sandenga Yeba · Senior Policy Advisor, Deputy Director of Policy, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Heather McPherson · Member of Parliament
Health
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Reported by Tammy Moore · In-house (organization)
- Supriya Sharma · Chief Medical Advisor, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Michelle Ferreri · Member of Parliament, House of Commons
Health
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Reported by Tammy Moore · In-house (organization)
- Francesco Sorbara · Member of Parliament, House of Commons
Health
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Reported by Tammy Moore · In-house (organization)
- Francis Drouin · Member of Parliament, House of Commons
Health
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Reported by Tammy Moore · In-house (organization)
- Linsey Hollett · Director General, Health Canada (HC)
- Supriya Sharma · Chief Medical Advisor, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Sandenga Yeba · Senior Policy Advisor, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Supriya Sharma · Chief Medical Advisor, Health Canada (HC)
Health
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Reported by Tammy Moore · In-house (organization)
- Luc Berthold · Member of Parliament
- Stephen Ellis · Member of Parliament, House of Commons
Health
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Reported by Tammy Moore · In-house (organization)
- Heather McPherson · Member of Parliament
- Luc Thériault · Member of Parliament
- Todd Doherty · Member of Parliament
- Francis Drouin · Member of Parliament, House of Commons
and 1 moreShow fewer
- Carol Hughes · Member of Parliament, House of Commons
Health
From the Office of the Commissioner of Lobbying's open data, published November 5, 2026. Reports cover oral, arranged meetings with designated public office holders since November 22, 2021; lobbyists file them by the 15th of the following month. Names of MPs are matched to the current House of Commons, and bills are linked when the lobbyist's own description makes clear which bill it means. Contains information licensed under the Open Data Licence Agreement — Office of the Commissioner of Lobbying. Licence. PolitiKit is independent and is not endorsed by the Commissioner of Lobbying.